Sandi’s port was checked today after we had concern over the way it was acting and the way she felt with it. It was time for the monthly flush out anyway so they did that and took a look at things. We are told everything is okay and the symptoms she has been feeling the last few days with it are normal. Tonight the port is hurting her pretty good as it always does after they access it and do anything so hopefully that will back off in a few days.
Her next appointment as it stands now is next Tuesday, May 1 when she is supposed to have her PET Scan. Then on May 4 we are back to see the doctor to find out what the results of the scan are and where we go from here treatment. Sandi remains convinced that she is going to beat this damn thing. But, again today while we were waiting for her port to be worked on, we saw somebody who had a much better prognosis back in December when this all started who is now going into hospice tomorrow as the chemo just didn’t work. That raises the number of folks we directly know to eight who had much better chances of beating what they were dealing with than anyone thought for a second Sandi did.
Believe me, I want to be positive this is all going to work out even if being positive is so not in my nature. But, they told me on Thanksgiving Day she would be gone by this June. I can’t get that out of my head. I have hard time believing she is winning the battle between what I know and what I see. For every good day she has, she does too much and then suffers horribly for the next several days. Whether the overall trend is going up or down I don’t know. It is all a blur and all way too much.
On behalf of all of us I just want to say thank you again to all those who have donated. It means a lot to us and we very much appreciate it. As you can see over on the “Chip In” widget we are still very far from the goal. Hopefully, we will make it one more time. Please know that we are not wasting your donations. I promise you we are only doing what we absolutely have to do in order to hold things together here as long as we can. We are truly grateful for your help and it means so much to all of us.
Please keep us in your thoughts, your prayers and your wishes…..