I don't know much at this point. I was able to talk to her for about a half hour this morning between deals and she was holding up okay. The big news was they were advancing the timetable on everything. Out the window was the two week period between today and when things would actually start happening. The latest she knew at that point was involved some stuff planned for Friday to install a PICC line into her chest on the left side and a couple of other things.
I just got a text from her and she says that they are planning to do an echo cardiogram this afternoon followed by a chest x-ray. This is supposedly routine and they will be comparing it to previous ones to make sure the chemo has not damaged her heart preventing a bone marrow transplant. Seems to me that should have been done here before she was put on a plane and flown there.
She is also waiting for the Wal-Mart HR department to confirm what everyone has been telling them for two weeks now---that she is staying there and needs a hotel room as they only booked Sandi for one night. That was last night and as of right now they don't have a room for her. These are the same people who setup her flight arrangements and have her booked for a return home in June. Supposedly this happens to everyone they bring in and it should be fixed later today.
There are words to describe this hotel nonsense and I am restraining myself mightily.....
******UPDATE********2:45 PM*******UPDATE*******
Just spent an hour on the phone with her. The PICC line deal planned for Friday has been postponed. Instead, they will be doing another PET SCAN so they have their own baseline for comparison purposes. Tomorrow there is another routine cardiac test at 8 am her time and then she meets with the psychologist and the social worker to go over her case and the changes she will have to make when she comes home. For one example--when she is back, she can't handle raw chicken for any reason as that could make her sick and kill her.
Tonight's hotel situation is resolved as she stays in the room she already has for another night. At some point tomorrow, they will move her into another room in the neighboring hotel where she will have a kitchenette and a couple of other things.
She is very tired after everything she has done today. The tour of "The Atrium" deal for her extended stay post implantation has been postponed till tomorrow or later as she really wasn't up to much more today. She says everyone there has been super nice and helpful and are bending over backwards to make things as easy as possible.
You mention "psychologist and the social worker". Am very much hoping that Mayo is able to discern the isolation that WalMart has laid on Sandi, and can work with local resources to give her backup. That the social worker will actually embrace her real situation. Like, an apartment and her own space will be nice, but what earthly use will a kitchenette be when she is too exhausted to look after herself.
ReplyDeleteI think the primary focus of the psychologist and the social worker will be in regards to lifestyle changes that she is going to have to do to give the stem cells their best chance of saving her life. I don't know for sure. I have not heard anything from her this morning and am hoping that does not mean anything bad.
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