Friday, April 12, 2013

Sandi Update

She had her shot early this morning and seems to be doing okay. So far so good. She did not get an afternoon nap today like she should have because our phone was constantly ringing. Over a dozen phone calls this afternoon and things seem to be coming together. Nothing is totally finalized, but, this seems to be the current plan.

In about ten days she will be in Jacksonville, Florida at the Mayo Cancer Center Clinic for her stem cell transplant. Because of everything here  I am not going to be able to make the trip. Somebody has to stay herewith the boys (both special needs and they can't drive)  and hold down the fort. Fortunately, a friend of hers has agreed to go and will be flying back and forth at various stages over the next two months to help Sandi as she goes through the process. The process is very complicated and I will explain later when I am in better shape to do so. The bottom line is Sandi will be gone for two months and I can't be there or do anything about it at all.

I'm very frustrated that things are being handled this way as it would have been easier on the patient and us if she had stayed here with the doctors she has been working with the last several months. We are not being given the choice to make the medical decisions on this as her employer, Wal-Mart, is mandating everything regardless of what the doctors involved, the insurance company, etc., think. We have no choice at all! The only saving grace in this is the fact that her cancer doctor here spent a lot of time in the past working with the man who will be working Sandi's case while she is in Florida and has tremendous respect for him.

I have to trust this stem cell transplant thing is not only going to work, but this trip and everything with it is the best thing for her. And somehow come to terms with the fact that there is not a damn thing I can do about any of it.

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