We are back home and she is now sleeping. Everything seems relatively stable medication wise though they are going back to the original inhaler she was on that insurance denied. That one worked way better than their recommended choice. Her lungs seem about the same though it does seem like she is breathing harder here at home. By leaving her steroid dosage where it is and bringing back the original inhaler the hope is that she will breathe more comfortably. We are too keep a very close eye on the swelling in her lower legs and feet as it seems to be trying to come back.
The plan at this point is to have her see the cancer doctor in three weeks and then assuming everything is okay they will do another IVIG infusion the same day.
Had a very difficult discussion with the financial aid counselor as the amount we owe continues to escalate because of the new deductible this year. They need our monthly payment to go up by at least 35 percent and that is nearly impossible right now. Sandi having her unpaid medical leave terminated and her job along with it at Wal-Mart may or may not allow her to qualify for some things. New paperwork has been filled out and we await another phone call from the MASH program people. The expectation by all is that we don't qualify, but we don't know yet.
Embarrassing as heck not to be able to just take care of your own stuff.
We just got back, too. PET scan today, results Monday.
ReplyDeleteI hope they can figure out something for your finances and that Sandi continues to hold her own.
I think we need to move down to Alvin so we could share transportation duties. Hope you guys get good news Monday.
ReplyDeleteI hope so too.