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Back home and as usual some things went up, some things went down, and some other things stayed relatively stable. Additional blood work testing is being done to clarify a couple of issues. Depending on what happens with that, at this point, she is scheduled for another IVIG infusion in two weeks.

She also has to have a bone density scan  as soon as possible because of some of the meds she takes could be doing damage to bones.  This is especially true of the steroids and a couple of other things that she absolutely has to have to breathe.

They gave her another round of immunizations today so you know they felt she was stable enough to do that.