Sandi's clot on her neck is still there seven months after it was discovered after the stem cell transplant down at Mayo. It seems to have shrunk some, but, it still is there. We await the results of doctor discussions as to whether or not a med change will happen.
Needless to say the patient is very unhappy as she wants it gone and to be off the meds for that.
As it stands right now, the only thing she has scheduled is blood work and a doc visit next Tuesday morning.
Showing posts with label blood clot. Show all posts
Showing posts with label blood clot. Show all posts
Tuesday, December 10, 2013
Thursday, June 06, 2013
Birthday--Plus 25
As Tropical Storm Andrea works her way northward across Florida this evening, Sandi is finishing up her 25th day since she had her stem cell transplant. She continues to do amazing well all things considered. She still has some pain in her neck in the area of the blood clot, but the swelling seems to have gone away. Hopefully this does mean the cumidin has gotten to a high enough level that the blood clot is finally dissolving.
Tomorrow afternoon she has approximately four different appointments in different labs and back and forth to the cancer doctor office to see how she is. Sandi is still wanting desperately to come back home. The original plan was for late June, but they gave her a little hope last week she might be home sooner. As much as I want her back home too, I want that damn blood clot gone first as I am very worried about her flying with it.
I don't expect any information from her until late tomorrow--possibly early evening--and will update when I know something.
Tomorrow afternoon she has approximately four different appointments in different labs and back and forth to the cancer doctor office to see how she is. Sandi is still wanting desperately to come back home. The original plan was for late June, but they gave her a little hope last week she might be home sooner. As much as I want her back home too, I want that damn blood clot gone first as I am very worried about her flying with it.
I don't expect any information from her until late tomorrow--possibly early evening--and will update when I know something.
Tuesday, June 04, 2013
Sandi Tuesday Evening
The patient is not in the best of moods tonight.
First, she did NOT get yarn yesterday at Target. I apparently totally misunderstood the situation.
Second, they did not do an ultrasound on her blood clot. Her cumidin level is 1.9 and since that was below 2 they did not do the test. Her other blood work continues to show improvement so that is good. They seem happy with where she is, but did not really do anything testing wise she thought would be done today or tell her that things are drawing to a close in Florida. She had the idea that would happen today.
So, the long and the short of it is they will see her Friday and put her through a number of appointments/ blood work to see how she is. She wants to come home NOW, but that is not happening yet.
First, she did NOT get yarn yesterday at Target. I apparently totally misunderstood the situation.
Second, they did not do an ultrasound on her blood clot. Her cumidin level is 1.9 and since that was below 2 they did not do the test. Her other blood work continues to show improvement so that is good. They seem happy with where she is, but did not really do anything testing wise she thought would be done today or tell her that things are drawing to a close in Florida. She had the idea that would happen today.
So, the long and the short of it is they will see her Friday and put her through a number of appointments/ blood work to see how she is. She wants to come home NOW, but that is not happening yet.
Monday, June 03, 2013
Sandi Today
Just talked to her and she enjoyed her trip out to Target today. Said it was nice to go poke around like a normal person. Apparently she was able to get some yarn too so that made her happy.
More importantly she reports that her neck is better today. Less pain and less swelling in the area. Sandi says the neck is not as stiff as it has been in recent days either. Still not right, but better which might be a good sign. This was the first night in a week that she hasn't sounded very raspy. Hopefully the cumidin level is now high enough that the clot has begun dissolving.
She has five appointments tomorrow starting just after nine with various doctors and testing folks. Hopefully, by the late afternoon all the news will be in and it will be good.
More importantly she reports that her neck is better today. Less pain and less swelling in the area. Sandi says the neck is not as stiff as it has been in recent days either. Still not right, but better which might be a good sign. This was the first night in a week that she hasn't sounded very raspy. Hopefully the cumidin level is now high enough that the clot has begun dissolving.
She has five appointments tomorrow starting just after nine with various doctors and testing folks. Hopefully, by the late afternoon all the news will be in and it will be good.
Friday, May 31, 2013
Birthday--Plus 19
Sandi continues to do the same as her fourth evening in the extended stay facility winds down. She had another doctor appointment today with her cancer doctors who remain pleased with her progress. Her various blood counts continue to trend upward which is a good sign.
A not so good sign is the fact that her cumidin numbers remain very low. It had been my understanding they had given her a shot of this the other day and it was a one time occurrence. I was wrong. In addition to some sort of injection she has been giving herself twice a day of blood thinner, apparently she has been taking cumidin several times a day as well. Because her numbers are so low they have upped the dosage as well as the frequency of the dosage. Until she gets to somewhere between 2 and 3 as they measure it, they will not ultrasound her neck again and check the status of the blood clot.
I really wish they would as Sandi tells me her neck remains swollen, painful and stiff in the area. Her voice becomes very raspy if we talk for any length of time at all. That is caused by the blood clot pressing through the artery and up against her vocal cords. Then there is the fact that her energy level seems to be markedly down the last couple of days and she is very cranky. Of course, she is now expected to do far more for herself than she was while in the hospital and that no doubt is taking a toll on her. It may also be the constant toll of being poked and prodded as well as trying to placate a husband who isn't there and is now very worried because of the blood clot.
I do not know what is going on with her. All I know is that she sounds very weak and sick again and nothing like she has in recent weeks that gave me so much hope that maybe she was going to beat this damn thing. I am hoping that nothing bad is happening to her and the damn blood clot dissolves quickly.
All this just has to work.....
A not so good sign is the fact that her cumidin numbers remain very low. It had been my understanding they had given her a shot of this the other day and it was a one time occurrence. I was wrong. In addition to some sort of injection she has been giving herself twice a day of blood thinner, apparently she has been taking cumidin several times a day as well. Because her numbers are so low they have upped the dosage as well as the frequency of the dosage. Until she gets to somewhere between 2 and 3 as they measure it, they will not ultrasound her neck again and check the status of the blood clot.
I really wish they would as Sandi tells me her neck remains swollen, painful and stiff in the area. Her voice becomes very raspy if we talk for any length of time at all. That is caused by the blood clot pressing through the artery and up against her vocal cords. Then there is the fact that her energy level seems to be markedly down the last couple of days and she is very cranky. Of course, she is now expected to do far more for herself than she was while in the hospital and that no doubt is taking a toll on her. It may also be the constant toll of being poked and prodded as well as trying to placate a husband who isn't there and is now very worried because of the blood clot.
I do not know what is going on with her. All I know is that she sounds very weak and sick again and nothing like she has in recent weeks that gave me so much hope that maybe she was going to beat this damn thing. I am hoping that nothing bad is happening to her and the damn blood clot dissolves quickly.
All this just has to work.....
Tuesday, May 28, 2013
Sandi Update
It took far longer than planned today, but Sandi is moved from the hospital over to "The Atria" for the next phase of things. This is where she will be for the next two to three weeks while they monitor her and make sure things are staying on track.
Things are on track, but there has been a definite wobble of the train. Apparently yesterday afternoon she started having a little soreness in the right side of her neck. The area was also slightly puffy. While she didn't tell me because she knew I would worry, she brought it to the attention of the nurses. By this morning it was clear it was a little worse in both regards. Before they pulled the three line deal out of her, they did a quick ultrasound of her neck
Sandi has a small blood clot in the main artery that runs up the right side of the neck between the heart and the brain. After they explained this happens to about 90 percent of patients who go through what she has gone through the last several weeks, they then told her that her particular clot is very small as compared to what they normally see. They believe it will soon dissolve. They gave her some cumidin today and sent her over to the extended stay facility with a box of shots that she is to administer to herself twice a day into her stomach.
Blood clots are bad news and while I am rather freaked out about this, she is taking the attitude that it is no bog deal and will go away quickly. Hopefully, it will. Her first appointment back at the hospital is tomorrow and she has a schedule for the next week where on most days she will go over for a doctor visit and/or blood work as they monitor things.
Things are on track, but there has been a definite wobble of the train. Apparently yesterday afternoon she started having a little soreness in the right side of her neck. The area was also slightly puffy. While she didn't tell me because she knew I would worry, she brought it to the attention of the nurses. By this morning it was clear it was a little worse in both regards. Before they pulled the three line deal out of her, they did a quick ultrasound of her neck
Sandi has a small blood clot in the main artery that runs up the right side of the neck between the heart and the brain. After they explained this happens to about 90 percent of patients who go through what she has gone through the last several weeks, they then told her that her particular clot is very small as compared to what they normally see. They believe it will soon dissolve. They gave her some cumidin today and sent her over to the extended stay facility with a box of shots that she is to administer to herself twice a day into her stomach.
Blood clots are bad news and while I am rather freaked out about this, she is taking the attitude that it is no bog deal and will go away quickly. Hopefully, it will. Her first appointment back at the hospital is tomorrow and she has a schedule for the next week where on most days she will go over for a doctor visit and/or blood work as they monitor things.
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