Finally back home and the overall news was good. Everything that is happening with Sandi is perfectly normal at this stage post stem cell transplant. Blood work looks good and they are very pleased. Long term prognosis and treatment was not discussed as they were really focused on what we need to do the next couple of weeks. The long term stuff has to be coordinated with Mayo staff who uses a different treatment protocol than what her people here do for a stem cell transplant procedure.
The firm belief here is that she still has the blood clot in her neck
though it probably shrunk just enough that the neck swelling went down.
They believe strongly that, despite what she was told, Sandi was put on a plane and sent home with the
clot in there. Needless to say, I am not pleased about that.This also backs up what Sandi has been saying all along regarding the fact that her neck still does not feel right and she has occasional pain in there. For now they are leaving it alone and will not ultrasound the area.
Basically, leave everything alone and just watch her is the mantra for anything and everything right now.
At this point Sandi moves to a once a week blood work deal. Her next time for blood work and a doctor visit is next Wednesday morning. In between she is supposed to keep eating right, being careful not to overdo things, try to walk a little bit around the complex each day, get plenty of rest, take her 18 daily drugs, and to just be careful "not to rock the boat."
All in all, things seem to be on track in the right way and now we just have to wait and see...
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3 comments:
"Right track" sounds good!
Everything sounds goos. You two are in my thoughts for that to continue. It's time for things to go right for a while.
Thank you both. I hope so. I am still very worried about a number of issues with her, but, I do feel a little better than I did before the appointment yesterday.
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