I got an e-mail tonight asking me how she is doing and wondering how we are all doing. I also was told I should go back to what I used to do and share more as so many are hoping and praying for us. It feels a bit like I am whining, but here goes since I can't sleep anyway.
She continues to hold her own though the recent cutback in steroids has definitely taken a toll. She is back taking a long nap most afternoons and heading to bed early. Today was a rare day in recent weeks as Sandi was able to stay up most of the day as you know if you follow her on Facebook.
For those interested her blog is here.
And her craft store, which she is keeping open for now, is here.
Her next appointment is still a week from Friday when she sees the cancer doctor and then does another IVIG infusion. Hopefully when they do the bloodwork that day they will see some sign that that stuff is doing something.
Paperwork has started arriving indicating that Sandi's official termination date from her unpaid medical leave at Wal-Mart was March 28th. We do not yet know how much COBRA will be and proably won't know until sometime late next week. We do know that as of tonight she owes about $2300 to Texas Oncology for stuff insurance won't cover to date. Not to mention all the other medial bills that --despite having payment plans in place as we did what we were supposed to do each month--have now rolled over to collection agencies anyway.
So, that is where we are.....we just keep trying to hang on and not think about all the issues.
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