Showing posts with label disability. Show all posts
Showing posts with label disability. Show all posts

Sunday, December 18, 2022

Guest Post: Why Mystery and Detective Series Should Include Disabled Characters by Justin Murphy


Please welcome author Justin Murphy to the blog today…

 

Why Mystery and Detective Series Should Include Disabled Characters by Justin Murphy

 

In recent years, there are quite a few Crime, Mystery, or Detective novels with disabled or Autistic characters. Whether be the investigator or such character somehow included in the story. Extremely Loud and Incredibly Close depicts a boy with Asperger’s Syndrome named Oskar Schell who searches the five boroughs of New York City for a key belonging to someone in the area. One given to his father who fell from a window at The World Trade Center on 9/11. The Curious Incident of The Dog In The Night-Time is set in England and centers on an Autistic, Christopher John Francis Boone investigating the murder of a neighbor’s dog. One he, at first, is arrested for. Another instance is House Rules where adolescent Theo Hunt looks after his older brother Jacob, who also has Asperger’s, one accused of killing his social skills tutor. There’s also the recent success of The Maid, which portrays a domestic servant at a hotel who also has Autism and probes into a murder where she works.

 The success of the above titles prove readers are willing to explore stories in the genre depicting characters with disabilities or on the spectrum as either active investigators or wrapped up in a crime, possibly with said individual as the perpetrator. Yet as a self-published author with Cerebral Palsy caring for an Autistic brother, I yearn to see a series of novels tackled involving such topics. An author and reader in my position should wonder, ’’Why isn’t there one?’’. There are many novel series featuring detectives and criminals from a wide array of racial and ethnic backgrounds as well as gender and sexual orientation. Where are series in this genre representing the disabled in any fashion?

 It's ironic how everyone is afraid of offending people to the point of bowing to the above forms of diversity and inclusivity. Yet seem to live in fear of many topics related to disabilities or those with special needs. In my eyes, lack of inclusion for the latter is far more offensive than any anxiety over the former ever could be. Why can’t agents, editors, or publishers understand this? Are they THIS scared of authors portraying a disabled person the wrong way to the point they won’t even take the risk of signing works including such characters? There are quite a few factors to consider, and this article will examine them.

 The Notion That Disabled (Or Any Minority) Characters Don’t Make Money:

 First and foremost, like with any other profession, publishing is a business designed to make profits for agents, editors, and publishers. If the talent or authors they signed have titles that don’t make a return on their investment, these novelists or writers are left to find work elsewhere, or even leave for another profession. This financial risk is often why the above invest in brand names such as Stephen King, James Patterson, or J.K. Rowling. Such authors are brand names with proven track records who can deliver beyond said return. Regardless, King has written about characters from all walks of life, including a disabled African American character named Edgar Freemantle, an amputee who’s the lead character in his novel Duma Key. The author himself suffers from macular degeneration and dealt with many injuries from a hit and run accident in the late 1990’s.

 Likewise, Patterson has also written a bestselling series of novels around the African American police detective Alex Cross. Both he and King are Caucasian authors but have succeeded in including different minorities. The former has also written the female centric series, The Women’s Murder Club while the latter’s debut novel, Carrie, revolved around an adolescent girl discovering she has telekinetic powers. If anything, these authors are very conscious of diversity or inclusivity of minority characters. Like how J.K. Rowling, a female author herself, found success writing about a boy wizard named Harry Potter. Since publishing is a business, they each realized the need to tell a marketable or entertaining story first. Although the downside of this is they could be accused of cultural appropriation with said inclusion. Allegations of this nature were hurled against Rowling toward her use of Native Americans in subsequent works and was also criticized for her comments regarding the transgender community. It should also be noted neither Jonathan Safran-Foer, author of Extremely Loud and Incredibly Close, nor Mark Haddon, who wrote The Curious Incident of The Dog In The Night-Time, are known to be disabled or served as caregivers for those with such needs. The same goes for House Rules writer Jodi Picoult and Nita Prose, who penned the recent hit novel The Maid. However, minority authors do achieve success by merging their diverse backgrounds with a mystery and detective series. Such as biracial Jewish and African American author Walter Mosley with his long running Easy Rawlins novels and Tess Gerritsen, author of the female centric Rizzoli and Isles books.

 Successful Standalone Novels Might Not Sustain Well As A Series:

 It’s true while a story can be successful as a novel, it doesn’t mean subsequent installments will do well. Either the author may not pursue such avenues, or said agent, editor, and publisher doesn’t elect to go down this road. Above all, a successful book may not justify such. On top of these factors, the aforementioned novels – Extremely Loud and Incredibly Close, The Curious Incident of The Dog In The Night-Time, House Rules, and The Maid tend to be bundled in more with Literary works or Children’s/Young Adult fiction. While not always the case, these genres don’t often lend themselves to continuation in a series the way crime, mystery, or detective stories do. Also, these standalone works explore the unique viewpoints of said characters and their special needs. Such attributes might get lost as a series progresses.

Another issue in the event of a series would be the question of, ’’Would this be plot driven and focus on the cases, or be character based and show how the disabled and their caregivers navigate through life with investigations being secondary?’’. Such paths can go either way and a series is sometimes better when a balance of both is managed. Yet as I mentioned above, this can become hard after an initial period. Conversely, such attempts may have a rough go at first and find its footing after the first few installments. Of course, the main factor in the scenario is the character’s disability, no matter whether it's the cases or characters that get emphasized. The crux of such tales will be how his or her special needs will affect the story.

 Active Investigator Who’s Disabled vs. Investigator Who’s Also Caregiver for a Special Needs Person:

This might be a debate that will rage on regardless of the approach taken with any written works involving disabled characters. There are those who portray them as active and capable lead characters in their own story, along with other authors depicting them as supporting players who need help throughout their lives. Possibly with the lead taking care of them. Extremely Loud and Incredibly Close, The Curious Case of The Dog In The Night-Time, and The Maid emphasize the former while House Rules somewhat focuses on the latter. As someone with a mild case of Cerebral Palsy who cares for an Autistic brother, my life occupies both ends of this spectrum. Maybe the true answer lies somewhere in the middle by including disabled characters who are somewhat independent and can help with the investigation or disclosed as being involved in a criminal act. Along with depicting a detective or perpetrator caring for a disabled person in their family life.

In closing, I want to reiterate the four above novels have now set the tone. Three of them have a disabled investigator in a mystery while one feature a protagonist caring for a disabled brother suspected in a criminal act. Despite being pegged as either literary novels or fixtures of the Children’s/Young Adult genres, they began the progression of including characters and issues of disability in the context of crime, mystery, or detective novel. Authors writing series in these related genres pertaining to or involving disabled characters are the next step. Regardless of whether said writers are disabled themselves, care for someone with these ordeals, or simply including the topic in their stories. This craft and business always presents an evolution with such issues. 



Justin Murphy ©2022

Justin Murphy has self-published many works of Fiction and Non-Fiction through Amazon Kindle and Audible. For many years, he has also attempted the leap to traditional publishing and is now trying to get noticed in mystery magazines and anthologies. He deals with a mild case of Cerebral Palsy and helps care for a young brother who is Autistic. He considers him to be the joy of his life and wouldn’t have it any other way. He also dabbles in Photograph. They and their mother have traveled cross country, even making it to Yellowstone. All three are nomadic, doing so full time. Here are my pages for Amazon and Audible:  Justin Murphy Amazon Page and Justin Murphy Audible Page

Friday, May 03, 2013

Thank you ......and an Update

The rent is paid as we barely made it. Thank you!

Hopefully we shall soon hear something about Texas Medicaid for Sandi and the discounts on the phone and electric bills from LITE-UP TEXAS that we should have been receiving the last five months if records and forms hadn't been repeatedly lost. I have written the governor's office to complain and attached documentation proving what has been happening.

Since handwritten notes were not getting the job done, I have created a standard form letter that all doctors, hospitals, and support services will  start getting when they bill us. I explain the reality of our situation and the fact that we are still waiting for Texas Medicaid to process her application. I suggest that since they know our financial situation and her medical status as well as mine that they may wish to contact Texas Medicaid directly and see what they can do to assist them with processing our case so they receive any monies they are actually owed. Ten such letters went out today so by next week those parties will know again what they need to do to help us and themselves.
 
We don't know where she stands on the Social Security Disability deal. We sent all the "expedited" paperwork back and signed numerous releases to allow both the SSA and the state to get her medical records. The entire process for cases like hers is supposed to take about 120 days from start to finish and we think we have crossed the 100 day point.

I also have filed complaints with the Depart of Education regarding Sandi's student loans with NELNET and GREAT LAKES. In both cases they have refused to work with us and have ignored documentation from last December to last week sent by us as well as other parties. Instead, both continue to harass us with dunning notices and robo calls. Why they think that does anything when they know our situation I have no idea, but, they stupidly keep beating their head against the walls. Whether complaining to the Department of Education, as we had to do in the past on both companies in order for them to get their customer service act together, will do any good this time, I don't know. But, having given the fools at both places plenty of opportunity to get things straightened out and suffering epic failure from both of them, it seemed time to start screaming blood murder about their stupidity.

And the beat goes on........


Thursday, November 15, 2012

"Say, have you read my book yet?"

and variations of this where in five separate e-mails this morning. In each case i had to explain that I hadn't as I am way behind.

One of the reasons is because I have to spend a lot of time each week writing appeal letters on insurance stuff, food stamp stuff, and Social Security stuff. Case in point is today I am having to write several letters on different things. One of which is to Social Security.

Back a couple of months ago Social Security sends me an application to fill out to see if we qualify for assistance paying my Medicare Part B. Currently they deduct $100 from my small disability payment each month to pay for Medicare Part B. So, having that $100 bucks back would be huge to us.

We fill out all their paperwork. Spend another hour on the phone talking to a very nice guy from Social Security in an office in Arizona going over all sorts of things. Had to also get Karl to not only dig out a bunch of boxes so that I could find what they needed, but to also fax tax records from 2010 for us over to this same office to correct old information they had.

All together spent about five hours on this project up until today.

Today they deny us saying Sandi earned over 19k in wages at Wal-Mart this year. I wish!!!

Actual figure--from January 1, 2012 to this date-- is $7,549.89.

I have no idea how they came up with 19k. This happened despite the fact they verified again and again that she had been out on unpaid medial leave since May 5, 2011 all the way to July 5, 2012 due to her knee surgery and then cancer.

So, the real figure ---that they missed by over 11k and change ---is $7,549.89. Figure won't change much --if at all--as she is out on UNPAID medical leave now and not getting better.

Writing appeal letter to SS office in McKinney, Texas and providing proof via pay stubs of her actual income and medical status via doctor orders. Hopefully, somebody up there can fix this screw up and finally get us the help we need.


Kevin

Tuesday, September 04, 2012

Couple of Things

I know there has not been any reviews in the last couple of days. I am working on them. Just been kind of busy here with various deals. So, more reviews are coming.

I mentioned last week I would be under Medicare as of Saturday. That has happened and I now have  an appointment with my cardiologist for next Wednesday morning bright and early.  This is an office visit only. I expect him to order the usual tests and those will have to be set up. No doubt an echo cardiogram and blood work for sure.

I am hoping to avoid the chemical stress test, but time will tell on that. Since I can't walk, a traditional stress test is out of the question. I have had the chemical version a couple of times and it is no fun. So, I hope to avoid that if at all possible.

Once this stuff is done and we know where I am cardiac wise, I hope to be able to do something to at least help with the pain on the back and leg deal. I am not looking forward to being poked and prodded, but it is nice to be able to get seen health wise again.



Kevin




Thursday, August 30, 2012

The ALJ Ruling---I’m Disabled



Back in late June I had my hearing before the Administrative Law Judge regarding my Social Security case. I answered a lot of questions as to the pain I am in daily, how my life has changed since March 25, 2010 when I was put on medical leave by the district, what I can and can’t do, and a host of other stuff. I explained in detail what I actually did for the school district when I was employed as the vocational rehab specialist that was there described me doing far different work than I actually did.

It was a very exhausting and extremely painful experience.  Not just in terms of the physical effort to attend the hearing, but in terms of the emotional. Very tough to hear your life and work history summed up by others in cold terms.  

The bottom line is that the ALJ judge found in my favor and issued a ruling of “fully favorable.” This means he did find me to be disabled.  Something that anyone around me knew to be true after a couple of minutes.

I am to get a small amount of back disability pay as well as a small monthly disability check. At this point I have no real idea when those payments will arrive. What I am told in one letter is not what I am told in another. The good news is at least something is coming at some point. I also now know that working for the school district also means that my payment will be far lower than it otherwise would be because the PISD didn’t pay into Social Security.

Sure, I knew that at the time when I went to work for them.

But, I only thought of that in terms of retirement. Retirement was way off in the future and a mythical thing I rarely thought about---if at all.  I never once thought of the impact of that decision should I become disabled.  While I now know full well the economic cost of that decision, I will never know if being thrown over a desk by a very angry special education student more than once at my last assignment, being slammed into the walls, or any of the other physical situations I found myself in the last assignment as well as over the years in the PISD caused or contributed to where I am at now.

All I do know is that finally I should be receiving a little monthly money to help us here. That will mean an end to the donation widget at left that has been a major savior to us and at the same time a huge humiliation. While I am very grateful for all the help we have received, I am also very embarrassed to be in a situation where I had to ask for help just to keep a roof over our heads and other basic necessities. As long as Sandi is still able to work and I receive my small monthly check, unless another disaster strikes, we won’t have to ask for help. Feel free to knock on wood--I AM!

The ruling also means that come Saturday I will be under Medicare. This will mean that I can start seeing my doctors again. First up is my cardiologist so that I can find out how bad my heart enlargement is these days.  Then it will be on to the back/leg deal to see if I can get any relief at all.

This also means I can go to a doctor to do the paperwork so that when I do drive somewhere I can park in a handicapped accessible spot once I have the plates/placard. Something that will help me tremendously due to my increasing lack of mobility and other issues.  Walking anywhere with my cane or walker is painful and exhausting.  An ability to park closer to the doors will be a huge relief.

With Sandi still in cancer remission based on the latest PET scan and this deal with me, hopefully we are turning a corner and things are going to start getting a little better.  Time will tell.

Kevin



Wednesday, June 20, 2012

Disability Hearing Yesterday

Yesterday was my disability hearing before the Administrative Law Judge regarding my case. If he finds in my favor, I will finally begin to start receiving Social Security Disability. I answered a lot of questions as to the pain I am in daily, how my life has changed since March 25, 2010 when I was put on medical leave by the district, what I can and can not do, and a host of other stuff. I did have to explain in detail what I actually did for the school district when I was employed as the vocational rehab specialist that was there described me doing far different work than I actually did.

I had to be there an hour early for security procedures and to meet with my attorney. The hearing started late. So it was an hour of drive time down, an hour plus of sitting in some of the most painful chairs ever designed by mankind, nearly an hour for the hearing and another hour for the drive home.All of that did a real number on me. The good thing is I didn't embarrass myself by falling though as things went on I was more and more unstable on my feet even with my cane.

It went as well as could be expected, I guess. The whole process yesterday during the hearing was confusing and I didn't understand part of what went on. I still don't so hopefully my attorney from Binder & Binder and I did the right things. His decision won't be issued for three to six months so the wait will continue.




Kevin