Sandi

Today has been hell. She spiked a fever of 101 last night and was experiencing severe pain in the buttocks and tingling in both legs. They believe it is all caused by disease progression.  Rehab  made the decision late yesterday, before all this happened, they absolutely would not take Sandi as medically there was no point to rehab at the hospital. There was some discussion of trying to move her to a nursing home/rehab place for 20 days as allowed under medicare when you don't have a supplement so she could get maybe an hour a day of rehab. But, in the end it was decided, with lots of tears from both of us, that she will move to hospice for however long she has left.

She will be doing hospice at home as she wanted. As of now, we are to meet with a hospice coordinator tomorrow morning to put things in motion to deliver a hospital bed to here at the house as well as other supplies and start coordinating aides and medical staff. The goal at this point is to have her come home sometime Friday.

I think the last 24 hours brought it home to her what was happening and she decided enough was enough. Everyone on her medical team, including two nurses that have been absolutely wonderful with her the past two weeks, all told her in private conversations when Scott and I were not around that there really was nothing more that could be done to stop all the damn cancer.


I knew this was coming and it was still a brutal and devastating day.