It was a zoo out there, but we are finally back home. The 30 minute blood tests all came back with their usual numbers. Now we await news on the ones that take several days even if there isn't a holiday. Everything looks about the same as last time so they went ahead and gave her the last round of childhood immunizations for now. Assuming things work right, her next round of those shots will be at 24 months post stem cell transplant which works out to next May.
In the meantime, we can't do the PET SCAN she needs to asses her cancer situation as her blood sugar numbers are too high. The max for such a test is 200 though they really prefer 180. She is seeing numbers between 300 and 550 which are very bad numbers.
Which is why she has a new endocrinologist and now is on insulin shots. As expected, the shots have made her way worse on her blood sugar numbers than the oral medications, but we are told to wait and be patient as the right dosage has to be found for her so they can work her numbers down.
As it stands now, she is back in bed having been worn out by all this today. We go back down there Monday for the endocrinologist appointment. Then, barring anything else, three weeks from tomorrow she will have another multi hour IVIG infusion.
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